Email from John Shea
Name: John Shea
Date: 2015-05-03 01:05
I bought your book and I know what you are talking about!
I am a 67 year old male that was finally diagnosed with Parkinsonâ€™s in 2014 but what is remarkable is that I lost my smell in summer of 1993 and at about the same time I had a bad case of vertigo. The vertigo and loss of smell I now believe is some how related to Parkinsonâ€™s.
I was a long time long distance runner and I religiosity ran 20 to 30 miles a week, year-in and year-out. I started having movement issues in 2008 after I stopped running due to bone and joint pain. I believe if I had never stopped running I may have avoided Parkinsonâ€™s. I have many of the same symptoms as you but no where as severe.
After my diagnosis I was started on Azilect and within a week or two I regained a significant amount of my smell back and much of my movement ability. I believe that my running either stopped or substantially slowed down my Parkinsonâ€™s.
Now after I ride my bike hard for an hour I find my remaining symptoms alleviated. I have also tried your speed walking and I have experienced a noticeable relief although it only lasts for several hours.
Thank you for writing your book.
Email from Atomic64 on the HealthUnlocked Blog
Thank you for your message. I have been reading your website for a couple of weeks now. I am completely convinced by the method you describe. I have been noticing that I can control my walk (this is before I knew I had PD) if I do what i called a "deliberate walk" with swinging arms. I do look as if I am about to conquer a country, especially if I am in boots, but who cares.
Before i knew what i had i thought 'why do i need to think about how i walk'... well, now that i know why it's actually easier. Simpler to think that the brain doesn't get engaged so I am helping with deliberate action as it cannot be automatic. I am walking far better with sticks, i.e. nordic walking as it keeps my posture up and i don't really limp. I am keeping a journal of exercises to see what feels the best. Swimming is great, as is yoga, as is boxing.
The only piece of advice of yours (that i have read on your website) I will have trouble with is reducing stress, in this case at work. I have a job which i cannot walk away from yet as i have kids who will need some support for a few more years. On the other hand, doing research for my PhD on the side gives me the relaxation i need and intellectual stimulus you also mention as required.
William here, I want to tell you John Pepper's story as he related it to me. John's story is a story of passion and excitement that I want to share with everyone, especially those that suffer from Parkinson's disease.
In 2002, John wrote his first book – “There IS LIFE After Parkinson’s Disease” - but doctors complained that the title claimed that his Parkinson's disease was now in the past, and he was therefore cured, even though he says he is not cured – so he changed the name of the second edition to - “There IS LIFE After Being Diagnosed With Parkinson’s Disease”.
In his book, he claimed that:
“Nobody would ever know he still has Parkinson’s Disease”.
To put this claim to the test, John consulted another eminent neurologist, who said that:
“You do not have Parkinson’s Disease. There is no cure for Parkinson's disease, therefore you never had Parkinson's disease”
This neurologist did not carry out a proper clinical test on John. He mainly based his opinion on John’s outward appearance, which certainly did not look as if he had ever had Parkinson's disease. But, as he states quite clearly in his book, he still has many of the symptoms of Parkinson's disease, but because he has been able to overcome most of the movement problems, he is now able to live a perfectly normal life, providing he maintains his new life style regimen.
After selling 700 books, without any advertising, other than by word of mouth, he decided to change the name of his book to – “Reverse Parkinson’s Disease” – because of the success his story has had with patients, who have read his book and taken the bold steps he has recommended, in order to change their life style.
Why not find out what those lifestyle changes are?
All of John’s recommendations are common-sense solutions to general health problems, and cannot do any harm to anyone, unless their doctors have advised them not to do any meaningful exercise.
If John’s recommendations are all common sense, then why don’t more doctors recommend that Parkinson's disease patients take his advice?
That is a good question!
Do any of John’s recommendations get used for the treatment of other health problems?
Yes! They do!
Speech Therapists use some of these solutions and Cardiologists use others, to treat people with heart problems! Business people use other solutions to improve their business skills!
Why don’t Neurologists routinely recommend these solutions to
their Parkinson's disease patients?
The only answer John can come up with, as a layman, is that only a Parkinson's disease patient knows what he/she is capable of doing.
Parkinson's disease is a movement disorder, and part of his regimen involves strenuous exercise, and who would think that that would be a possible solution?
What type of strenuous exercise is John recommending?
You will have to read his book to find out how he came to the conclusion that walking was the single best exercise to do for Pd. He also does other exercises for strengthening his core muscles, but the answer to this question has to be put into a routine that most Parkinson's disease patients will be able to follow, without injuring themselves.
John has been there! He knows what is possible for a dedicated
‘Couch Potato’ like him to do!
John also knows that unless the Neurologist insists on his patient carrying out these life style changes, or the patient knows for certain that other patients have successfully done it, then the patient will never commit to this routine. It is much easier to take pills and accept what the future has to offer!
Why does John not claim to be cured?
Because he is not cured! If he stops his routine, due to other health problems, of which he has several, then his Parkinson's disease starts to deteriorate again. If ever he stops exercising, or whenever he got clever and stopped taking his medication, during those ten years after being diagnosed, then his condition got appreciably worse.
Why does John no longer take
any Parkinson's disease medication?
John’s Parkinson's disease is at the stage where medication is no longer needed, providing that he continues with his new lifestyle regimen.
Thank you for reading this story,
William Ainslie (John's Personal Trainer)